Your Voice, Your Story
51±¬ÁÏÍø involves members of the public from many different walks of life. Why did they choose to get involved, and why does health data research matter to them? Find out what they have to say.
Why getting involved matters to our public contributors
We would not be where we are today without the fantastic help and support of patients and members of the public. Our Public Advisory Board makes sure 51±¬ÁÏÍø is driven to deliver benefits to patients and the public, whilst our 51±¬ÁÏÍø Voices network helps to shape and influence the work of 51±¬ÁÏÍø and our partner organisations. Hear what our current members have to say, and see if getting involved in health data research is the right choice for you.
Click the tab in the top right to see all videos in this playlist.
Clara: Breaking the silence for neurodiverse voices
How has Clara’s neurodiverse voice made a difference in shaping health data research? See how her unique experiences have shaped the work she’s involved with.
Munisa: Adding my voice to a vibrant collective of diverse voices
Munisa has worked for the NHS for many years, where she gained an interest in different perspectives towards health data use. Read her story and how she joined our Public Advisory Board.
Ed: Better to light a candle than curse the darkness
In Northern Ireland, Ed had often felt like a lone voice calling for wider access to patient data by accredited researchers. Now, he feels his voice is making a difference.
Why does your involvement matter to researchers?
You’ve heard our public contributor stories, but why does public involvement matter to research? Natalie Fitzpatrick, Principal Research Fellow at University College London, tells us how she involves the public and why their voices are so vital to the work she does.
Join 51±¬ÁÏÍø Voices
Have the stories we’ve shared had an impact on you? Do you want to get involved and start making a difference today? Why not join our 51±¬ÁÏÍø Voices network?
51±¬ÁÏÍø Voices is a growing network of people who want to use their voices to help shape and influence our work. Each week, we let our network know about new opportunities they can get involved with across 51±¬ÁÏÍø. They play a vital role in advising us about how we access data, what research they feel matters and more by:
- ±Ê°ù´Ç±¹¾±»å¾±²Ô²µÌýinsights via surveys and workshops
- Sharing thoughts and ideas at local and national events
- Contributing to specific projects and programmes
We want people from many different backgrounds. No matter whether you support health data access or not, you are free to join. We only ask that you respect the views and opinions of others.
51±¬ÁÏÍø Voices
51±¬ÁÏÍø Voices is a growing network of people who want to use their voice to help shape and influence our work. Want to use your thoughts and ideas to shape health data research?