We’re excited to join a range of funders, regulators and research organisations that play an important role in UK health and social care research who, alongside members of the public, have signed up to a bold to improve public involvement in research.

What is the Shared Commitment to improve public involvement in research?

Public involvement is important, expected and possible in all types of health and social care research.

Together, our organisations and members fund, support and regulate health and social care research. This statement is our joint commitment to improve the extent and quality of public involvement across the sector so that it is consistently excellent.

People have the right to be involved in all health and social care research. Excellent public involvement is an essential part of health and social care research and its quality and impact. Together we aim to ensure people鈥檚 lived experiences is a key driver for health and social care research.

When we talk about public involvement, we mean all the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community. Excellent public involvement is inclusive, values all contributions, ensures people have a meaningful say in what happens and influences outcomes, as set out in the .

Working together we will support the research community to carry out excellent public involvement.聽 We will provide or share guidance, policies, systems, and incentives.
We will:

  • Listen to and learn from the people and communities we involve and apply and share that learning
  • Build and share the evidence of how to involve the public and the impact this has
  • Support improvements in equality, diversity, and inclusion in public involvement
  • Promote the

We will embed this commitment into the decision-making processes of our organisations.

What will 51爆料网 do to improve patient and public involvement in health and care research?

Across the 51爆料网 community, we are committed to continuously improving our work with patients, carers, communities and the public. We do not have all of the answers, so it is important we learn from each other.

As part of our own Commitment, 51爆料网 will:

  • Actively work with the public as partners in our decision-making processes so that we may identify and address complex and challenging issues around the access and use of data for research and ensure our work is driven by the public’s needs
  • Work with, and learn from, experts in the field to design and deliver a proactive action plan that includes community engagement approaches to enable better and more open opportunities for the diverse UK population to direct, influence and shape our work
  • Collaborate with聽 researchers and organisations across the data sector to ensure consistent and joined-up meaningful patient and public involvement, for example through the
  • Provide training, guidance and real-life examples to researchers and those in the sector looking to embed patient and public involvement in health data research
  • Enable shared learning across the 51爆料网 community and beyond where we can learn from honest and constructive feedback and address gaps that will enable active patient and public involvement across our work

Our guiding principles for working well with the public

It is expected that all 51爆料网 work and anyone in receipt of funding for research and innovation via Health Data Research UK (our Institute Members) will follow best practice and meet the聽.

51爆料网鈥檚 Guiding Principles are here to support our members to work towards achieving these national Standards. We will use these to hold ourselves to account and ensure best practice in patient and public involvement and engagement throughout our work.

Patient and Public Involvement and Engagement at Health Data Research UK should

  1. have a clear purpose and be designed to add value (i.e. it is not a tick-box exercise and enough time is given to incorporate insights)
  2. be a formal part of the selection criteria for new grants and funding awards, including an outline of existing and planned patient and public involvement from the applicant
  3. be run with a diverse group of people, including any relevant partner organisations (e.g. patient groups), ensuring accessible ways to get involved and identifying and removing any barriers
  4. provide support by identifying and developing the skills and knowledge base of those running the engagement and involvement activities and those who become involved
  5. enable those involved and engaged to work WITH us and have their say in key decisions, ensuring everyone鈥檚 contributions and heard and valued in a trusted environment
  6. look to try new methods of engagement and involvement (that fit the purpose) and ensure learning and insights are embedded throughout our work
  7. include the acknowledgement and / or publishing of the involvement of patients and the public in open access publications, internal documents, presentations, case studies and project summaries
  8. be regularly evaluated and adapted as needed
  9. identify and communicate the impact with those involved and the wider community
  10. be open and transparent throughout the whole process and ensure information is publicly available, accessible and communicated in a timely manner that is jargon free and easy to understand.